Wig Update

I wanted to give a little update on the wig I purchased.  I know most of you have seen it on my Facebook, but for those who didn't I wanted to make sure I talked about it here for those that might have to pick out a wig and are having trouble finding one. 

Here is a picture of the one I purchased.  The hair on the sides is not my hair, but the wig.

The problem I was having is that I don't have big hair, I don't even have a "style" to my hair.  I've had the same hair since high school.  I don't use hair spray, I don't have layers and I don't have bangs....it is just boring.  lol!  Well, the wigs were just too fancy for me. They all had styles and I felt like I was drowning in hair every time I put one on.

I went to a place in Brentwood, TN called "The Wig Shoppe" and the woman there told me she had something that I would probably really like.  She was VERY helpful.  It is called a "Halo".  lol!  I hate the name.  Anyway, as soon as she put it on, we (Kevan, my parents and I) thought it was perfect.  There is no "top" to the wig.  So, I will have to wear a bandana, hat or scarf.  Otherwise, you will see my bald head.  :o)

The best part, it won't be hot!  When trying on wigs I've realized they itch and they are hot.  Because this one doesn't have a top to it, it will be a lot cooler.  I did purchase a couple scarfs to go with it, but they were pretty expensive.  So, hopefully, I can find a few cheap ones.  :o)  Otherwise, I can wear a ball cap or hat of some kind.

The worse part of looking at wigs is that for my length of hair they were running between $200 and $400.  She even put a wig on my head that was $4,000!!  This wig was less than $100.  Perfect!

I'm sure when I'm at home (I work from home) I won't wear a wig.  So, this will just be for when we go out or go to church.  It is fast to put on...just a little headband that goes over my head.  So, I won't have to worry about it taking a lot of time for me to fix.  I love it.  I had tears in my eyes after she put it on because I finally felt like this was me. 

Thanks again for all your prayers.  I wanted to find one before my surgery so I would be all ready when chemo started.  I'm ready!  God blessed me with the perfect wig.  :o)

Doctor Visits and Wig Shopping! Oh My!

I did not realize, but some of you thought my surgery date was yesterday.  I'm so sorry.  I can't remember if I posted the new date or not.  The date was moved and is now Tuesday, 5/8.  One week from today.  I have to be there at 9:30AM CST and the surgery begins at 2:30PM CST.  It sounds a little crazy that I have to be there 5 hours early, but my surgeon confirmed that it takes that long just to prep me for surgery.

Yesterday was a long day.  Kevan and I drove to Nashville at 7AM for a 9AM doctor's appointment.  Well, I had remembered the time wrong and didn't look at my handy dandy calendar that I had put together in Word.  We didn't need to be there until 10:45!  I don't know why I ignored my calendar.  Duh!  But, they said they would try to fit me in earlier.  Their office was so busy they ran out of chairs and had to bring some in from the cafeteria.  So, Kevan and I ended up leaving at the time our appointment was supposed to be to get some lunch.  We were pretty excited since we LOVE Qdoba and there was one down the road.  We sat outside and enjoyed the beautiful weather that God blessed us with as we ate our yummy lunch. 

When we returned to the office we were called in to meet with the occupational therapist.  She went over all of the potential side effects to having a sentinel node biopsy.  Mostly, we talked about Lymphedema.  Since I have cancer in both breasts I have to have a couple lymph nodes removed from both sides to have tested.  This will give my oncological surgeon more information while he is doing my mastectomy and he will know if it has spread to my lymph nodes.  The PET scan didn't show any cancer anywhere else, but it can only find masses of a certain size so I still have to have the biopsies done.  So, she (the OT) went over all of the precautions I must now introduce into my life so that I won't develop lymphedema.  I won't be able to fly without a compression sleep on both arms, can't have blood taken out of my arms (will have to use my leg/foot), no blood pressure cuff on my arms (they will use my thigh) and I have to try not to hurt my arms in any way.  No cat scratches, no working outside without gloves or sleeves, etc.  Basically, I just need to make sure that I do not get an infection or hurt my arms in any way because this could cause excess fluid which could result in lymphedema.

The OT measured my arms and she will use the measurements to compare to my "after surgery arms" to see if there is any fluid building up and then she will check me about every 3 weeks.  There are a few things that can be done to stop the lymphedema (therapy, draining, etc) so we will want to catch it early.  The OT also gave me the cute crocheted chemo cap below.  I'm not sure if I will be brave enough to wear it out of the house as I am a "plain" person who doesn't wear bright colors or flowery things, but it is definitely very cute!  We will see.

Once we were finished with the OT we saw my oncological surgeon.  They are in the same office.  He walked right in and handed Kevan 2 free movie tickets and a $10 gift card for refreshments!  He said he doesn't like his patients to have to wait so long and he wanted to do something nice for us.  What a blessing it was and all doctor's should do it!  I have wasted a lot of time in doctor's offices in my lifetime and he showed that he really did care that we were wasting a bunch of time waiting.  Kevan and I love having date night and we usually go to see a movie on Friday night so it was a great gift for us. 

Then, the doctor did a quick ultrasound to see if he could find the mass that the PET scan revealed as cancerous on my other breast, but he couldn't locate it.  He was going to try to do a core biopsy to get a better idea of what type of cancer it was and to confirm it is cancer, but all he saw was fibroedema and cysts.  So, no luck there.  We will have to wait until after the surgery (when they do the full biopsy) to find out more.  The nurse practitioner gave me my Oncotype DX Score.  It is a test they run on the biopsied tissue (from my lumpectomy on April 3) to determine the aggressiveness of the cancer as well as the recurrence rate.  My score was 70.  Which means, "The cancer has a high risk of recurrence, and the benefits of chemotherapy for early-stage breast cancer are likely to be greater than the risks of side effects."  So, this helps to confirm the 6 rounds of chemo I will be receiving and why I will have to go through it.

After we visited the doctor we headed out to a wig store.  A friend told me about a place, but Kevan and I went to the wrong one and they did not have a big selection.  It was owned by a woman that was about 200-years old.  Just kidding.  lol!  She was very sweet and had some VERY strange views.  She did show us a few for a small charge of $7.  It is normally $17, but I think since I have cancer she gave me a $10 discount.  lol!  You can see the "WIG Demo" sign behind my head.  It said $17.

First, she pinned my hair and put this "wig sock" on my head.  <Kevan took the pictures with his phone and he was trying to hide the fact that he was taking pictures so she wouldn't tell him not to so they aren't great pictures...sorry!>  I look TERRIBLE.  I guess this gives me an idea of how I will look soon.

Then, I tried on a few.  This one was pretty close to my hair color, but I don't have bangs!  They were in my eyes.  I couldn't deal with it.

This one was ok, but it just didn't seem like me and it wasn't long enough.

I liked the color of this one, but Kevan didn't like it.  Plus, it has bangs and I kept telling her I didn't want bangs.

Let's just say it was not a fun experience.  I didn't like any of the wigs and none of them looked like my own hairstyle.  I am just boring and there were no boring hairstyles. lol!  They were too fancy.  Also, each of them were $395!!!  Kevan took a picture of one of the tags and when we got home he found one of them online for $109!  So, she had put a $280+ mark up on them.  I won't be visiting her again.  lol!

My mom and I will be visiting another wig store before the surgery date next week.  Hopefully, I will have better luck.